Showing posts with label Jesus. Show all posts
Showing posts with label Jesus. Show all posts

Saturday, March 12, 2016

The Darkness of The Train Tunnels Is A Light For Someone Else

It seems the train has been running backwards on the tracks lately, my mind has been on the past. My lupus has been flaring up and my stress levels are high. What do they say about your frame of mind? If you are anxious, you live in the future. If you are depressed you live in the past. If you are at peace you live in this very moment. I am always trying to escape this moment, whichever moment it is, so I am often both anxious and depressed. Some thoughts I can change, some I cannot. Not even the xanax can help when your mind turns on  you, it can just ease you through a few of the rougher patches.
Tonight, for absolutely no reason, I had this fragment of a memory flit through my brain. I grabbed it before it fluttered away and nurtured it, until the fragment grew into a full story. Once upon a time my father took two of my brothers and myself away from our mother. We went to live, for a while, with my mother's parents in a tiny town in Indiana. My grandparents had a house at a crossroad. Across the street from the front of the house was a corn field. On the other corner was another pretty little house and the last corner, diagonal to their house, was a church. A tiny little white country church. The area was full of trees, grass, the houses neatly kept. The main - and only one of two - paved street through town boasted only three or four businesses and a volunteer fire station. The houses were little Victorian cottages, neatly kept. I remember a lot of elderly women with dainty furniture and hand embroidered tablecloths, fragile tea cups and gossipy visits. My grandmother had a garden in her back yard, as most folks did, and she would make corn husk dolls. In the early twilight of a new autumn, the only one I spent there, we would sit on the porch steps and watch the last of the fireflies dance across the broken stalks in the harvested corn field and hear an occasional howl which chilled me far more than the wind. But what I remember most, that fleeting bit of memory that came to me today, was of the church. It was simple compared to the mega-million dollar monuments to various pastors these days. The vestibule was tiny and the pews were hard. They were of a dark, polished wood and the older women that volunteered to clean the church must have put a great deal of care into their work because that wood shined. The windows were all very gothic in shape, and stained glass. I do not remember the depictions, only that they mesmerized me. The church was open all of the time and I often snuck in to play in the pews and wonder at the patterns the sunlight created through those magical windows. I remember that the community would come together for dinners, weddings, parties - all held in the basement. Mostly, though, I remember that I often sat in the back pew. I was a curious child, easily bored unless I had a book - and the bible did not count at the time. Often, there was a gentleman in the back pew with me and, looking back, he was probably in his late 60's, at least. This would have been somewhere around 1979 and I was a very tomboyish six year old. In fact, something that still makes me burn with shame happened about this time. I was always anxious to shed my dress and shiny shoes for shorts and ragged sneakers the moment church let out. And, being in the back pew, I was out faster than anyone. I was so fast, in fact, that one Sunday I was in my play clothes and on my bike before anyone else had really moved beyond the church yard toward their cars, parked on the sides of the street. I, having been cooped up too long with nothing but the magical windows to keep me entertained, sped out on my bike like a Tasmanian devil, wind whipping through my already messy hair. I must have been feeling particularly dare devilish on that day because I found myself veering toward a car and, before I could straighten up, the side of my handlebar left a long scratch on the car. I never did 'fess up. I put my bike away and suddenly the freedom of those two wheels and the riotous wind in my hair had lost their allure. But, as I was saying, there was often a gentleman in the back pew with me. Elderly already, he would be long gone by now. But I remember that he seemed . . . melancholy. And that he always had a butterscotch in his pocket for me. I remember his hands, the skin parchment paper thin, veins standing out, knuckles knobby and his fingers twisted a bit. And I remember his sad eyes. I think now, perhaps, he must have been a widower.
So I was just going through the motions, putting medication in Bee's feeding tube, when that church, that man, just flickered into my brain. The more I thought of him, the sadder I became until I sat down and sobbed for a man I can barely remember, one I'm sure whose name I never even knew. A man I sometimes sat beside during a brief summer and autumn of my childhood with sad eyes, old hands and a butterscotch always at the ready for an unruly little girl looking for magic in stained glass windows. A man long gone in years and memories, I'm sure, and yet I sobbed for him as if he had been my own flesh and blood and had just passed on. It took a long time to stop crying. I think, at some point, I stopped crying for the perceived loneliness of that old man and began to cry for my own consuming loneliness.
And now I sit here, the occasional tear still falling, wondering about the mysterious roads my mind often takes me down these days. I think the memory came to me because - other than myself - he has become, in my mind, the picture of loneliness. Not just loneliness. but of actually being alone. Bereft of loved ones, of friends, of community, of purpose. I feel that way so much of the time. And this man came to me, this lonely memory wandered in, because in the last week my daily devotions have concentrated on the sacrifices of Jesus. And, for some reason, I've found myself so busy that the days I've been able to pray my rosary without falling asleep have been Tuesday, Friday and Sunday - and if you are Catholic you know that those days (the Sundays during Lent) are all about the sorrowful mysteries. The first mystery is the Agony In The Garden, and it described the terrible loneliness that Jesus felt as He prayed.
InTouch had a devotion titled "The Cost of Our Salvation" a few weeks ago. Did you know that Jesus was completely separated from God during this time? That He was not just feeling the weight of our sins, He was feeling he weight of the shame, the burden of punishment, and all without that lifelong connection He had always had with God. He was, utterly and completely, alone. Even His friends could not stay awake, they did not seem to understand His great loneliness and agony. How alone He must have felt. Somewhere in my brain, in the haze of anxiety and xanax, I seem to have put the old man from my childhood and the image of Jesus weeping in the garden together and the thought of that elderly gentleman brought me to thoughts of Jesus, weeping in the garden and praying for God's love that was, for an allotted time, withheld from Him.
It is both a comfort and bitter knowledge, that Jesus understands my dreadful loneliness. I know I've written about that before - loneliness is a longstanding theme in my life. But until recently, I did not know or understand the absolute depth of the loneliness He must have felt, having been separated from God entirely. I have never felt that. God has always been in my life. I tell people sometimes - and they always look at me as if I'm daft - that God is in the flowers. As a little girl, nursing bruised flesh or feelings, I would creep into our forbidden flower beds, lean against the house and feel the flower petals. Born with Anosmia, I could not smell the flowers, but I would rub the velvety petals and feel . . . comfort. I would feel God, as if He was sitting right there enjoying the beauty of the very flowers He had crafted and watching over me. And even in times when I cannot feel God's presence, I know that He is watching over me, working in my life behind the scenes, on miracles both big and small that will come into my life in time. Unlike Jesus, I have never been without God at my side. But, for a time, that was a price Jesus was willing to pay. And the more I learn about what He went through, the more I understand, the more I am both thankful and shamed.
And so, as I sit here still weeping for a man lost to time, for myself, I know that Jesus understands how I am feeling, more than I would like Him to. Before I had my little breakdown I didn't understand people with true anxiety or depression, but now I do, more than I would like. The price Jesus paid for our sins wasn't just an accounting, sins tallied and marked off a balance sheet - it was an example, yet again, even in those final hours, for us to follow: I understand your loneliness and so I can comfort you; I can be in your loneliness with you and will not abandon you.
What have you experienced that has changed the way you can be with your fellow man, that has given you a perspective that affords you a beautiful opportunity to simply be there for another person in their anguish, their loneliness, their anxiety, pain, depression .  . . ? Don't pass up the opportunity, it is a gift you have been given, that we have all been given, to take a darkness we have passed through and turn it into a light for someone else. And for me, it is a comfort to believe that one day, this bitter loneliness I feel to my very core will transform into something beautiful, something meaningful, and will give solace to someone else. And I pray that elderly gentleman from so long ago knows that his life profoundly impacted mine, in such a brief season, for such a small acquaintance, his life still has value.

Romans 5:3-5 Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character hope. And hope does not disappoint us, because God has poured out His love into our hearts by the Holy Spirit, whom He has given us.



Monday, January 18, 2016

First Stop of the New Year: Prayer - Part One

I'm tired. No, I'm weary. I'm exhausted. I am utterly and completely, deep in my bones tired. With both of the kids sick, and myself as well, the last two months have been very trying. Lately though, with the onslaught of sickness I have lost my way. Instead of exercising every day, writing a lot every day, editing, spending time in prayer, I have been just . . . wandering through my days and cramming all of those things in at the end of the day when I can barely keep my eyes open. This is another one of those days so this post will be in two part, second part tomorrow.
How is your prayer life? How do you pray? Since I was a little girl hiding, nursing bruises and a broken spirit among the flowers in our garden, I've talked with God like a friend, my best friend. Sometimes I ramble. I have a feeling sometimes I get on His last nerve because I'll get started and just go on and on, one thing leading to another. But when I was a little girl sitting in the flower bed feeling the velvety petals and knowing that God was in the flowers, I would just talk to Him. I had no friends, no one else I could talk to, so God got to hear it all. I have gone through periods in my life where I haven't really prayed, not daily prayer, just occasional things like "Oh my God, Bee isn't breathing please don't let her die." Things like that. But then there have been periods when I've prayed a lot. In the last couple of years I pray daily, rambling. I usually fall asleep talking with God. I bet He is usually pretty thrilled when I drift off, too, cause I can go on and on. 
Tonight, I watched War Room. Now, normally I'm not into Christian movies. They are usually very poorly done, the writing is bad, the acting worse. I had high hopes for God's Not Dead but was terribly disappointed. I will say that The Encounter with Bruce Marchiano was really very good. He plays a very convincing Jesus. Me, Again was cute and Christmas Angel . . . well, it was excellent and we love Della Reese ( especially Bee, she loves hearing her sing ) but the movie makes me feel lonely so I don't like to watch it so we skipped it this past Christmas season. Anyway, my point is that most Christian movie are not very good. I wasn't sure what to expect from War Room. What I got was excited, encouraged, and inspired. 
Every single night I pray the same things, the same way. Since I went a little crazy I'm a tiny bit OCD so there are some things that are just going to stay the same because my brain - even with my magic pills - is telling me bad things will happen if they don't. That's fine, God understands.  I have a very small life, I know, personally, exactly 32 people and I pray for each of them every night, plus some people that Noah knows and has mentioned. I even pray for my ex-husband and his now ex-wife because I'm hoping one day my prayers for them to be blessed will be sincere. But, in the end, my prayers are always the same: God bless this person, this person, and so on, occasionally adding a specific thing like heal them or help them with a particular issue, then I get to my kids, myself and then, well, I ramble. I ramble about things that bother me in the world, my worries, lots of what if's and existential blah blah blah (for the record and this has nothing to do with my recent crazy, I believe in aliens or the possibility and it doesn't challenge my faith in God or belief in the bible at all), then I read my daily devotion and the accompanying scripture, my usual comforting bible passages, look at the news quickly to see if anything jumps out that needs a little prayer and then I'm done. Same thing, for two years. And it's fine, I think, But it isn't enough. It's more like when my father would call his parents on Sunday afternoons to catch up and check in. Nothing exciting, nothing new but changes in the weather, same conversation every week. 
But this movie, it made me think.. Not that I haven't been thinking about it, my prayer life, but I've been kind of stymied. Without the chance to get to church, I'm kind of on my own in this. I'm in the middle of the sea with no land in sight, just swimming in whatever direction is easiest. 
Prayer shouldn't be like that, though. Prayer should be so much more than just the usual everyday stuff. I mean, sure, you can have that. That's great, gabbing with your bestie God. But it needs to be more. 
As a rather . . . reserved . . . person, I'm not going to jump around and scream "Hallelujah!" or anything like that. In fact, I consider my relationship with God to be the most intimate, private relationship I have. But there is certainly room for more passion, more enthusiasm, more time and commitment, more listening, more focus. 
My kids are both finally asleep so I'm going to head that way myself. But a thought to drift off on - how do I create a revolution in my prayer life?

Friday, January 1, 2016

New Year, New Stops

Frankly, I'm too sick to post much. We'd just finished the third oral antibiotic, the second steroid pack and five days of antibiotic shots with my daughter and she was finally feeling better, sounding strong, and then my son and I got sick. We tried to keep away from her but as I have to change her diapers, give her meds, change her position, give her breathing treatments, get her in and out of her wheelchair . . . well. Obviously keeping my germs from her was impossible. She is very sick again and, when picking up prescriptions today, insurance decided once again not to cover them. Between over the counter things like cold meds, airborne, pedialyte and a variety of others plus prescriptions we've spent hundreds of dollars in just the last week and a half. Money we would not have had if God did not have such perfect timing. So today, on the first day of the new year, I'd just like to say thank you to God and to all of the people that He works through. In particular in our lives in just the last few weeks that list includes our priest and the members of the RCIA, Not just for their kindness at Christmas but for the love, support, encouragement and sense of family they have given Noah. Noah's mentor/sponsor/friend and his family which contains one of the two friends I have left since I went crazy. That family! They gave Noah a gift for Christmas that can never, ever be topped and just, in general, are such blessings in our lives. Also, an anonymous person at the pharmacy three weeks ago that covered some of our prescription costs when I told the clerk I didn't have the money to cover the medications, as I thought insurance would. The Beekman 1802 Boys for being so kind and showing Bee's painting on their 24 hour youtube marathon just before Christmas. They praised her work and made her very happy! The man that cut my hair. Normally I don't get haircuts, I just hack at it when it gets too long and that is that. But a major mishap with the scissors required a professional. And as we've seen him before and always refer people to him, he did it for free, he said it was his pleasure as he'd had a good month and was just passing it along. The neighbor that found me outside crying one night, thinking of just being done with everything and she made me laugh then she bought me a card a few days later that made me laugh even more. There are others, the kind man at the electric company trying to work with me as I try to catch up on bills. The woman that always has a smile in her voice when I call to order Bee's usual medical supplies. God in so many people.
I need to go rest, I'm so tired. The coughing is just awful and taking care of the kids while being just as sick as they are is exhausting. If anyone wanted to get a doctor to make a house call, my preference is the Tenth Doctor. He may not be able to heal us but he's sure pretty to look at and that'd be enough.
So, for God, with ever so much gratitude:

Psalm 100
Shout for joy to the Lord, all the Earth.
Worship the Lord with gladness;
come before Him with joyful songs.
Know that the Lord is God.
It is He who made us, and we are His;
we are His people, the sheep of His pasture.
Enter His gates with thanksgiving
and His courts with praise;
give thanks to Him and praise His name.
For the Lord is good and His love endures forever;
His faithfulness continues through all generations.

Sunday, December 27, 2015

A Quick Side Trip To Joy

This will be a short post again, now instead of one sick child I'm dealing with two and I'm not feeling fantastic myself. However, I wanted to share my morning passage as it was just so uplifting. As you know I went crazy about six months ago or so, and so joy, hope, peace . . . not in abundance in my house. But every morning I read this morning prayer that is like a dedication of my day, my time and my attention to God. Then I read a praise passage in the bible. A while back I looked up a whole bunch of them and wrote them on an index card. Each morning I look one up and read it. Even the darkest of my days I start with praise to God, it is just plain essential. Today the passage was Romans 15:7 but I kept reading and came to this:

Romans 15:13 May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit. 

I needed that today, and of course God knew that. Not to say I was unhappy - though I've been trying to cut back on the magic pills and I can feel that anxiety slithering around in the back of my brain again - but just that joy, hope, and peace just feel too dangerous. Christmas day was extraordinary in our house this year. For starters, the priest at the church my son attends (Bee and I can't go, obviously, without any form of transport) came out. He was there to bless Bee and he brought two members of RCIA - who were just about two of the nicest people I have ever met. And this priest! First - priests and nuns are like rock stars to me (well, and writers. I'd need smelling salts if I ever met Stephen King or Judy Blume) so the fact that an actual priest was in my home was just so exciting. But this priest! He was so . . . exuberant. He simply radiated energy and joy and, according to my son, he is like that all the time. No wonder my son was willing to walk all that way for mass! So he comes over and blesses Bee. And let me tell you, she was happy and excited. I haven't heard her that vocal in AGES, seriously. She knew. Or maybe Father Mike's absolute joy and love just washed over her. I don't know. All I do know is that she was happy and so was I. Gosh, even Noah was and usually he is deep in the middle of moody teenage angst. But I tell you this because . . . it terrified me. To be that joyful, that hopeful, was frightening. The good days always are, because the bad days are so much worse, so much more of a fall.
Wow, I started this post two hours ago and only am just getting back to it. Apparently a sinus infection and sore throat are equivelant to the Black Plague to 16 year old boys. He keeps saying "Mom, I'm in so much pain, help me!" And I thought . . . didn't his dear friend and mentor give him a shillelagh for Christmas? Hmmm. It IS heavy . . . one good hit in just the right spot would knock him out for hours . . . but I decided against that particular form of pain relief.
Okay, so to make this quick because he'll need me again quite soon and the nurse should be coming for Bee at some point for her daily shot so I'll wrap this up. I'm pretty sure I had a point two hours ago and now I've just lost it. And I hear Noah growling so I must hurry. Joy is a good thing, a gift from God. Much like the child now beating on his bedroom wall crying "Moooooommmm. Moooommmm!"
Back again. Okay, joy is a gift. People that radiate joy like Father Mike are a blessing. And so, on Christmas Day, God was so very present in our apartment through the joy and love of Father Mike, Angie and Tom. Then, they handed us gifts and Christmas cards (which really excited me as I LOVE Christmas cards, I keep them year after year and I have tons of them) and found that they had blessed us even more. When my kids are better I must sit down and write each of them a letter but I do not think there are words to convey how we feel. But I will try. At first, my son and I balked at their kindness, we discussed the most tactful way of declining and returning the bulk of their kindness. We consulted Noah's sponsor/mentor and he told me that I needed to accept their kindness with gratitude and joy, that they would not have been so kind to us if they did not want to be. I felt selfish at the thought of allowing this, and we discussed it at length.
Oh good heavens, he's banging on his wall again. Okay - joy is good. Scary but good. It is a gift from God. Plus, there are people out there that have the gift for spreading joy just by their very presence and we were so blessed Christmas Day. Now I must finish because I have a shillelagh to find. . .

Tuesday, December 22, 2015

What The Dickens?!

The train is pulling into a train yard today - total chaos. My brain is going in a million different directions and the magic pills are only helping so much.
First things first - my Bee is very ill and not getting better. I know that we've been so blessed to have nearly 21 years already, but I suppose I am selfish and want more time. I'm not foolish enough to think I'll get another full year, I understand that. But I'm hoping for a few more months, maybe until I'm sane again. I don't think I could handle her passing in the best of times, right now during my unfortunate dip into the crazy pool, I think it would do me in. However, she had such a treat just a few days ago! We love the Beekman 1802 Boys and they wished her a Merry Christmas and even showed a painting she had done for them on their 24 hour live marathon! She was so cheered by that! And on Christmas day, Father Mike and some of the others from the church are going to come and bless her. The doctor is calling in a nurse for daily antibiotic shots. And today, my morning scripture was uplifting and hopeful and just perfectly timed:

James 5:13-15 Is any one of you in trouble? He should pray. Is anyone happy? Let him sing songs of praise Is any one of you sick? He should call the elders of the church to pray over him and anoint him with oil in the name of the Lord. And the prayer offered in faith will make the sick person well; the Lord will raise him up. If he has sinned, he will be forgiven.

Second things - my crazy. You know, I think the most frustrating thing about the panic, the anxiety is that there is no logic to it. You can sit yourself down and think clearly, logically, and yet it makes not one whit of difference. Knowing that you are fixating on something foolishly does not help, thinking it through does not help. For example, I am anxious about my fridge, for starters. I am constantly afraid it is going to break down. Every time it turns off I find my heart racing, checking the clock, waiting till it turns on again. Now I didn't just fixate for no reason, the temp fluctuates, it began making a worrisome buzzing sound, it makes all manner of loud and scary noises. And also, if it broke down and our food went bad, I have no means to replace the food to feed Noah. That terrifies me. I also have panic attacks about the rest of the apartment. I can't use my dryer anymore because apparently the vent that runs through my bedroom ceiling must be broken somewhere because the condensation of the drying clothes has been leaking from the ceiling and also you can hear it dripping into the walls - the complex dismissed it, apparently it happens in several apartments. So now I hang all my clothes to dry and just fluff them in the dryer. About a year ago our floors developed hills and valleys practically overnight. Again, apparently something not to worry about. But I do. I worry that this place is going to fall apart and we will be homeless again. That thought terrifies me more than I can express. In fact, that was about the time I started getting the little cracks in my sanity. I have a friend that prays for my fridge every day. Isn't that lovely? She embraces my crazy and prays about my fridge just because.

Thirds - I'm 42 today. I've been watching old episodes of the British comedy "Are You Being Served" and in one episode a man tells Mrs. Slocombe that he wants to buy a dress. She asked the age range and he says younger forties (that'd be where I'm at) and Mrs. Slocombe tells Ms. Brahms to get something from the "younger middle age category". Younger MIDDLE AGE???? That's where I'm at now? Middle age? How did that happen? I was 19 just YESTERDAY. And now I'm middle aged. I don't mind, so much, it's just that I had so many hopes and dreams and it feels like it is too late for them now. Like I'm an apple that fell off the tree and rolled under a bush and now I'm just drying out and if anyone ever happens to find me I'll look like one of those carved dried apples that look like little old ladies and they'll toss me back down again and that will be that.

Fourth - I've been thinking about my "friends". The ones mentioned before. Last night I found myself crying over them. All of it hurt, the things they said, the way they just walked away, the awful phone call from one of them saying terrible things but, mostly, the fact that not one of them chose to defend me. Oh drama llama. I miss them and I find myself crying over them more often than I care to. I'm not angry, just so hurt and confused. Who CHOOSES to become ill in any way, mental or physical?? No one would choose to have their brain turn on them like this, to feel like this all the time! I didn't choose this.

Fifth - how could I be so blind, me - the lover of Dickens? Me, who can quote A Christmas Carol practically line for line? Last night Bee and I were watching Patrick Stewart's film version - much darker than our usual preferences (Mickey's Christmas Carol and A Muppet's Christmas Carol) but quite good. I looked over at our Advent wreath and thought about how upset I've been, not being able to get my kids or anyone else what  I'd like to buy them. Worrying about stuff. Stuff! I lit my "miracle candle" and said a prayer of thanksgiving for all the miracles, but especially the miracle of the birth of Christ. I thought about that for a long time. Because we aren't really just celebrating the birth of Christ. We are celebrating the love of God, the love that Jesus also has for us. That they both chose - chose freely and without hesitation - to make such sacrifices for us all. God knew that Jesus would suffer loneliness, pain, fear, so many terrible things. And Jesus understood that as well. And yet they both chose love anyway. Why one Earth am I worried about foolish things like what I can afford to purchase when I should be showing my love and care daily to my children, to the people around us. God authored a whole book just to tell me that, sent His Son to show me that, inspired Dickens to write about it in the most lyrical, moving story ever written. Stuff is just stuff. It comes, it goes, we don't really need stuff. We need God, Jesus, each other. I'm rambling, I know. It's just that I found myself staring at the screen, at Capt. Picard as Scrooge laughing and frolicking because he finally realized it - Christmas is a feeling. Christmas is every single day. Christmas comes to us even without trees, decorations, presents (come to think of it, Dr. Seuss had it, as well). Christmas is an attitude, one of gratitude, humility, love, charity, compassion and thanksgiving and it should rule our hearts daily. It is not a season, a particular day of the year, it is choice every single day to look at the people around us with love NO MATTER WHAT. No matter that they might be unkind to you, or rude. No matter that they might hurt you. No matter that you are tired and broken. No matter what because we are all beloved children of God - every single person you see is a beloved child of God and someone that God sent His son to suffer and die for. God had to watch all that, you know. As a parent I think about that, about God watching it all and standing by His choice to love us, watching with pride that Jesus daily made that same choice despite everything.

I may or may not post again before Christmas Day. If I don't I wish you a Merry Christmas and implore you to remember that Christmas is a daily act of love to everyone you meet, the whole year 'round. And I'll leave you with this, for comfort and inspiration, as it is one of my favorites. Remember as you read it that this is what God and Jesus offer you, and what they want you to offer to others - love and peace:

Matthew 11: 28-30 Come to me, all you who are weary and burdened, and I will give you rest. Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. For my yoke is easy and my burden is light.



Wednesday, December 16, 2015

Is There An Infirmary Car On This Train?

Since nobody actually reads this blog I guess I can really consider it a diary, lol. Except for the (according to my stats) occasional Russian citizen (I thank you and promise I'm not a typical example of your average American). So I'm going to divulge a bit of information that I've shared with absolutely no one, not even my doctor yet. And not my doctor because she ordered an MRI many months ago and I had a bit of a claustrophobia issue (I practically clawed my way out of the machine, hysterical) and had to reschedule. Which I haven't done yet because at the time of the MRI debacle I hadn't fully realized that I was developing a full blown anxiety disorder. And although I'm being treated with semi magic pills for that, and was given a special magic pill to take for the MRI, the thought of going into that tube again freaks me out. I can't even handle the idea of that little cage thing they put over your face. That was actually when I started to panic last time. And so, until I can pluck up the courage to reschedule (yes, I'll do it soon, I know it needs to be done) and then get the energy to walk down there (I'm so tired lately) there is no point in telling my doctor my secret because she would say "Well, we really do need a good look at your brain, my dear." And then she'd give me that look like she's disappointed in me. So until then I will keep it to myself. Well, except for putting it out here on the internet. Which will largely go unnoticed. But it is kind of like gifts. When I buy a gift for someone it must be last minute because otherwise I can't wait and keep quiet until they open it, it drives me crazy. I want to see them open it and be happy so I badger them with hints and basically make gift getting for others an absolute nightmare because I am terrible at secrets. Now, I'll keep them, if I give you my word I'll keep it, but you can just be sure it will drive me nuts. So here is my secret: I have begun to develop small little signs that my lupus has moved into the neurological arena. When they first diagnosed me with lupus after my son was born I was shocked. The only thing I knew about lupus was what I'd seen in that movie Gross Anatomy and that wasn't good! But the doctor said that mine was mostly causing a lot of inflammation and that with a healthy diet, exercise, I'd be fine. I believed him and so for years I just kind of went on with life. As we get older we all get aches and pains, right? By the time I was really sick and in a lot of pain and found a good doctor my SED rate was over 100. It still hovers around 40, no matter what I do. And for several years it has mostly been joint pain and mild arthritis issues, some very mild kidney issues, just general icky feeling, a constant feeling of being tired and a LOT of weight gain from the Prednisone. And I know that I've been lucky, lots of women have suffered far worse with their lupus. But lately I've been having other symptoms and I know that although my life seems to be at a standstill (in Crazy Town, no less) my lupus is marching forward at a slow but steady pace. I just had to put it out there. I could never tell my son, he has enough to deal with. Besides, I just have one more year of his childhood and then he is officially an adult. Some nights I weep for all the things I wish I could give him. And not really things, experiences. Without a car we can't even go to the grocery store together, one of us must always watch my daughter. We haven't been out together to do anything other than walking to doctor appointments or the hospital in about four years. So many things I wanted to do with him, so much lost time. And really, he is such an extraordinary young man, he deserves the best. But in a year and one month he'll be an adult and rush off to live his life his way. My daughter will probably be gone by then, her health has been fading the last year or so and in the last six months she has been almost constantly ill. Once they are both gone I wonder sometimes if I will just . . . fade away? I have two friends, and they have busy lives of their own. So I wonder if one day one of them would say to themselves "Hmm. Didn't I used to know this one kind of annoying woman named . . . ?" and then the moment would pass and I'd find myself just a wisp of nothingness.
When my daughter was diagnosed nearly 21 years ago, I didn't understand what this life would be. When my husband left us, I did, and I made a choice. I didn't realize we'd end up living below the poverty level, but I knew it would be tough and that my life would become very small. I made that choice, to keep my daughter with me so that she would always be in a loving home, always know comfort and kind voices, never be afraid (except for lately we've had to go to the doctor for a lot of antibiotic shots and she'd beginning to flinch when she hears the nurse, poor thing). Point is, I knew that my circle would grow smaller and smaller, just not this small. My son, however, is finally starting to widen his circle, and that makes me excited. I want so much for him. I don't care if he makes lots of money, or becomes "successful" in some sort of career, I just want him to be happy, to be kind, to always be compassionate, charitable, and always open minded and fair. Rich would be nice, mind you. I'd like to eventually end up in a place as nice as the one Shawn was in in that one episode of Psych - although I'm still holding out for Star Trek type medical developments, lol.
Wow, I'm rambling. This train is just going on and on today isn't it? No logical stops, sorry. I think the conductor is taking a nap.
My point is, my anxiety is high, my lupus is getting a little rowdy, my daughter is very sick, my son is moody, I'm turning 42 in a few days and like most years the day will pass pretty much unnoticed even though I have this secret hope (okay, not secret now but who in Russia is going to tell?) that someone would one day make an actual big deal of my birthday. You know, cake, ice cream, a present, a hug (silly, I know). I've a few bills I can't pay this month and Christmas is nearly here. And then New Years, which always makes me sad anyway and people will insist on singing Auld Lang Syne which ALWAYS makes me bawl like a baby. Doesn't anyone else realize that song is SAD? How the heck did it become the song we sing to bring in a hopeful new year???
Wow, rambling again. Okay, to a point. Well . . . I don't have a point. I'm writing till the Goody's Headache Powder kicks in and my head hurts a little less. Okay, point. Hmmm. Well, I guess in the end my point is that God is here. Even though my life has gotten very small, even though I'm tired, sad, anxious, hurting physically and emotionally, even though it seems I've been forgotten, God really is still here. The other day when something terrible happened and I was crying a lovely friend told me that no matter what, God loves me. Even if my circle is so small it becomes a black hole, and I fade away, God still loves me. Even if another year passes and no one notices. Even if someone does something terrible to me and no one stands up for me and says "Hey, you can't hurt my friend like that!" Even if my son is almost out of his boyhood and I rarely catch those little glimpses of my baby anymore. Even if my daughter has only a little while left with us. Even if . . . oh, a lot of things. Sometimes, we need to come to the understanding that if all we have is the love of God, we have enough. If we have the love of God, we have a cup that is overflowing. So I'll stop my silly rambling and leave you with this:

Romans 8:39 . . . neither height, nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in Christ Jesus our Lord.

And just how much love is that?

Ephesians 3:18 . . . may have power, together will all the saints, to grasp how wide and long and high and deep is the love of Christ. 


Sunday, December 13, 2015

Rumbling Along The Tracks Through The Empty Wastelands

Last night something awful happened to me. It was so unexpected, so shocking, I've been so stunned, so hurt. As a little girl, and then as a wife, fear was a daily companion. I learned to read all the signs, to see what mood my stepmother, and later my husband, was in. Their anger would . . . shrink me. I would grow still inside, smaller, I suppose I was trying to fade away. I've been feeling that since last night, that stillness. I feel like I've been scooped out and left empty, I can't even seem to hold a thought in my head for long, I find myself drifting off.
I walked to the grocery store today. I had a perfectly lovely offer of a ride but after the terrible things that were said to me, I felt uncomfortable allowing someone to do me such a favor, no matter how sincere their offer. So I made the five mile round trip in the heat, honestly with nothing in my head for the entire walk there, just scooped out and empty, like I said. Still inside, and broken. The walk back was a bit harder, I had three cases of bottled water (the water here is awful and stuff is floating in it) in my little "little old lady cart" and the weight was hard to push. At one point I paused and looked up at the sky that was partly cloudy and saw a darker cloud in the distance with such a lovely rainbow. I thanked God for such an unexpected moment of joy and moved on. A little while later, I had to pause again. And there it was, moving along with me, that dark cloud with a lovely rainbow. As I walked for several minutes it seemed to keep pace with me and I began to feel hope. Hope that God loves me, that things will be okay. Then . . . it rained on me. Talk about mixed signals. I tried to cover things that needed covering in my little cart and by the time I was finished with that the rain had already stopped. I kept moving forward but soon hit a hole in the sidewalk and, because of the weight of the water, one of the front tires broke. I tried to fix it but it was no use. I was still nearly two miles from home. The only thing to do was to turn it around behind me, tilt it on the back wheels and pull. There were several times I didn't think I'd make it home, and the arthritis in my hands and hip was just screaming at me. By the strength of God and nothing more I got home.
I still have that scooped out and empty feeling, and all I want to do right now is push everyone away, keep them away, so that I won't get hurt anymore. For a few hours, I was even pushing God away. But by the time I had showered, given Bee her breathing treatment, made dinner for Noah and finally got a chance to sit and read my bible, I realized that God loves me, period. He loves everyone, no matter what we do, no matter who we are. And considering the fact that my life is so small I should cling to that love as it is the only sure love and acceptance I can depend on.
So as I was reading my bible I realized that I needed to just let go what happened, the terrible and hurtful things that were said, and to fill that emptiness with as much love as I can. That was when I ran across a passage in my bible that I have highlighted, and read often:

Colossians 3:12-17 Therefore, as God's chosen people, holy and dearly loved, clothe yourselves with compassion, kindness, humility, gentleness and patience. Bear with each other and forgive whatever grievances you may have against one another. Forgive as the Lord forgave you. And over all of these virtues put on love, which binds them all together in perfect unity. Let the peace of Christ rule in your hearts, since as members of one body you were called to peace. And be thankful. Let the word of Christ dwell in you richly as you teach and admonish one another with all wisdom, and as you sing psalms, hymns and spiritual songs with gratitude in your hearts to God. And whatever you do, whether in word or deed, do it all in the name of the Lord Jesus, giving thanks to God the Father through him.

I suppose I don't have a point to this post, I just felt like getting it all out. Scooping out any bitterness, hurt and anger that was filling up the empty space so that I can fill it with love, forgiveness, kindness and thanksgiving. And so, tonight (Xanax already taken, anxiety slightly at bay for a few hours) I will try to fall asleep with only good thoughts, with gratitude for my blessings, and perhaps with a small bit of hope at the bottom of all of that emptiness. For anybody that might ever read this - and according to my stats so far that is one American and three or four Russians for some crazy reason - I wish you a peaceful night tonight and a heart that is full of joy and hope. I know hope can be scary, but grab on with both hands tightly anyway.

Saturday, October 31, 2015

Still Riding The Crazy Train But The View Ain't Bad

So remember when I said I'd kind of gone off the deep end? Yeah well that was an understatement. I'm still there, riding the crazy train, barely treading water at the deep end of the pool, I'm living in a world without chocolate or books or green tea. . . . you get the bleak picture. Point is, this isn't something that just goes away. And looking back I can see that I started developing little cracks as far back as a year ago. Nobody else really noticed and I just thought lack of sleep and money, Bee's health, my son's depression and explosions, lack of transportation, lupus, and female issues were all conspiring together to make things a little tougher. And that is all certainly true. But it was something else, something deeper and I went a little crazy. Well, am a little crazy. And by the way, don't be offended. I'm from the South and crazy is a perfectly acceptable thing to be. I mean, don't you watch the news? ALL the crazy stuff happens in Florida which is because, I assume, per capita, we have more crazy people. I think it's the heat. And using the word "crazy" allows for a little levity. However, as a mother of a child that is, as defined by her diagnosis, mentally retarded I can understand if someone gets a little offended. After all, I've been known to go all mad cow on anyone I hear using the word "retard". So I get it but I promise, I'm not being derogatory.
So back to my point. I'm crazy and I'm now on crazy pills. They help a little but they make me sleepy. Now, lupus makes me sleepy. My heart defect makes me sleepy. The extra weight I've put on from the prednisone to treat my lupus makes me tired (which is different from sleepy as some of you might understand), stress makes me tired and so on and so on. Point is, if my air mattress was more comfortable I could stay in bed constantly and still not get enough rest. But the pills take a bit of the worst of the crazy away. Not all of it and I'm trying to keep the consumption to a minimum as I've been given the "addiction" caution talk from my doc about the meds. But at the moment I'll take addiction later for a little tiny bit of almost sanity now.
You're probably wondering where I'm going with this and what the heck it has to do with God. Well, I'll tell you and then I'll probably wander off onto another tangent and then get back to the point again. Try to stick with me, it might be worth it in the end but I can't promise anything.
Okay - here it is: God always has a plan. 
The point could also be: God can turn a tragedy into a miracle. 
A few scriptures to back these points up before I go on another ramble:

Romans 5:3-4 Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; character, hope. 

Okay, I'll ramble here for a minute. As I typed the scripture above I thought to myself "Who the heck enjoys suffering?" I mean, sure, we can keep our eye on the truth that God is at work in our lives but down here in the mud and the blood that doesn't always help. Or maybe my faith is still not strong enough. But I know plenty of faithful people truly living Christ-like lives (and this is a lot different than being a Christian but that is a rant for another day) and they struggle with struggle, too - if you know what I mean. But I think the intention of the scripture is that eventually, perhaps once the misery is over and you are on the other side of it, you can rejoice in what you went through because now you can see where that struggle has led you. Point is, God's got a plan and wide screen viewing, you know?

Jeremiah 29:11-13 For I know the plans I have for you, declares the Lord. Plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart.

James 1:2 Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance.

1 Corinthians 10:13 No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you can stand up under it.

That last one I think you can safely substitute the words "misery", "struggle", "trouble", "affliction of the crazies" or any other thing that pops into your head for the word "temptation". Basically, God's got a plan and He is going to make it all turn out alright. And that's my point today. My journey on the crazy train has taught me a few things about compassion, about being a friend, about not judging people, about walking the mile. And from the vantage point of nearly clear thinking in the middle of a dose of meds, I can see that this is a growing experience for me. An opportunity to become a better person because now I understand something that I previously had little compassion for. Not to say that I had none, but I didn't understand, and so couldn't fully respond with complete love and acceptance. Now, I have inside information, so to speak.
When the anxiety began to consume me, when the fear froze me, I started researching online for natural ways to treat anxiety. I read all about exercise, green tea, meditation, proper nutrition, and a variety of other things. All these months later I realize those articles are meant to treat the kind of anxiety everyone faces through daily stresses, not full on episodes of crazy. And trust me, the crazy has been all up in my business. Still, what could trying those things hurt? So I made a vow to exercise daily no matter how I felt (Leslie Sansone Walk at Home - try it, she is amazing and youtube has full length workouts for free) and trust me, there have been days I could barely slog through. But somewhere in my brain I got the idea that if I didn't do this, something bad would happen. For example, right now it is 2 in the morning. I haven't done my mile yet (I'm working up to the two miles but like I said, I'm so freaking tired) but I will before I go to bed, which is usually around sunrise. Another part of my anxiety is that it gets worse at night, and I feel like I need to be on watch. I also vowed to write creatively every day. Now, you may be reading this blog thinking "Why? She's not a talented writer!" and that's okay. This blog isn't about presentation, it's about reality. Remember what I said in the first post? This is a trip through my brain so I've already warned you - it ain't always gonna be pretty. The point is, I vowed to do it, even if it was just one single sentence, I had to write something. And so, I did. And last night, I finished a book.
Let me back up to the glory days for you (feel free to sing the song while you read this, it's a good song and now it's in my head) to my school days. From the first time I won an award for my writing in elementary school (it was a national award, by the way) I was certain I'd grow up to be a writer. All of my teachers (with the exception of my high school math teacher who believed I was some sort of personal blight) thought I would be as well. I racked up a lot of awards, had some poems and short stories published in a few magazines, newspapers. Typing this I get the image of a high school quarterback that everyone thinks is going to go on to the pros and get million dollar deals but at the 10 year reunion already has a comb over and sells lemons to us poor folk. That's kind of me - without the comb over though if this prednisone induced hair loss doesn't stop it might come to that. Point is, I married, had kids, specifically a profoundly disabled kid that was physically, financially, and emotionally draining (I love her, but hey, honesty here) and I quit writing for the most part. I put those dreams away. Oh, once in a while I wrote things. A short story that appeared in a regional magazine. A poem here and there for weddings and things (the thing being a eulogy for a child, sigh). But, mostly, I didn't write. If I had time to sit down for something like writing I was napping, I mean, come on! Last year - before the cracks - I started writing again. Then the cracks appeared and I didn't recognize them and thought I was just silly for trying again.
Always, though, in the back of my mind, was this thing someone said to me once - God gave you a gift, how are you using it? 
The answer . . . I wasn't. Then the question: Did I still have the gift? The answer. . . (ummm, I'm starting to sound like Oh from Home here) I didn't know and was afraid to find out. 
But my vows were to God, kind of like a deal. You probably know all about those, right? Fox hole deals. Help me out and I'll do blah blah blah. Well, frankly, God can smell fear induced malarkey a mile off so the only one dealing is the person in the fox hole. God's plans aren't going to change just because you vowed to be nice to your odd Aunt Patrice at the next family get together or volunteer more or whatever. YOU may change, if you choose to keep your end of the bargain, but God's got wide screen viewing, remember, and that fox hole is right smack in the middle of whatever plan he's been cooking up all along. 
But like most fairly honest fox hole deal makers - with the added bonus of my brain making me think I HAD to or bad things would happen even though I know well and good God doesn't work like that - I've been keeping to my deal. Daily exercise, ugh (though I've actually gained weight, not sure what's up with that) and daily writing. Gallons of Twinings Decaf Green Tea. As healthy a diet as my finances can allow. And even though the crazy was getting worse, I stuck with it. Seriously, sometimes I was like a puppet doing my exercise video. Some nights I really did only write a single sentence. And when it became obvious that I wasn't getting better I spent six weeks desperately trying to get in to see the doctor for some magic pills. And in case you're wondering, spending the night clutching your kids' bottle of seizure medication thinking you could drink it and everything would just be okay does not qualify for a same day sick appointment. Go figure. I did, however, manage to get an appointment for a sinus infection, thank God, or maybe I wouldn't be here right now.
So here I am, pills in hand. Still riding the crazy train. Still deep in the fox hole. But changed for the better, all the same. Although, to be honest, when I'd finished the last sentence of the book, got down on my knees in thanks, and realized I would not have written anything had my life continued down the usual track, I did hope that God would look down and say "Okay, good. Lesson learned. Let me just restore your sanity real quick." Judging by the anxiety slithering around in the back of my head today, I'm guessing He didn't do that. I mean, it would have been my preference but He's got that wide screen viewing and all so I guess I just need to keep on writing, exercising, drinking enough tea to raise Twining stocks, and hope that I'm close to the light at the end of the tunnel. And, in the meantime, just have faith and remember this:

Psalm 37:5 Give yourself to the Lord; trust in Him and He will help you.




Monday, October 26, 2015

Perspective

Recently I went through a box of old photos my stepmother had kept. One picture, in particular, had a profound affect on me. It was taken one cold, snowy December night when I was ten. The year was 1983 and I was just a few days shy of my 11th birthday. In the picture I am wearing a hideous red velvet jumpsuit with a frilly, red and white striped shirt and a pair of boots that had been handed down through my five older brothers and had been cut down a bit so that they would fit me. We won't even discuss my hair. It was, after all, the 80's and taken in that context - with the exception of the boots - I looked just fine. I was even smiling, which was rare for me as a child. You see, I was very excited. That night, I was to attend a church Christmas party.
A few months earlier my family had decided to look for a new church but by Christmas we hadn't found one. The pastor of our previous church and his wife had decided to become missionaries and I think my parents were not very fond of all the changes in the church after that. We hadn't attended in several months so it was a surprise when the new youth leader called our house one night about a week before Christmas. She wanted to invite me to the youth Christmas party. My parents said that I could go, but they would not drive me, so she agreed to pick me up and drop me off.
We lived at the end of a very long dirt road that meandered through thick patches of woods and pastures. The road was about two, perhaps three miles in length. My brothers and I walked this road every school day to the main road to catch the bus and this "bus stop" was where the youth leader agreed to pick me up. I remember that night very clearly. It was extremely cold and had been snowing all day. The wind was biting, the snow flying, and it was so very dark outside. I was afraid of the dark all those years ago. Okay, truth is I still am. But I'd have braved anything to get the chance to go to that party. My stepmother had been baking - a rare occurrence - while I was getting ready and when I left she placed a large slab of banana nut bread, wrapped in a paper towel, in my hand - another very rare treat. I remember how warm it was in my mitten covered hands and as I walked out the door I held it close to my face to feel the warmth. I honestly don't think it lasted very long, I was whip thin but had the appetite of two teenage boys. Because it was so cold, and so dark, I hurried to the main road. When I arrived I stood where I could easily be seen and waited. And waited. And waited. Eventually I was so cold I knew I couldn't stay out much longer and decided I'd better head back home. That walk, which before had been quick with hope and anticipation, was long and dreary and bitterly cold, inside and out.
My stepmother was angry to see me, insisted I must have dawdled and that the youth leader had tired of waiting and left. I had embarrassed the family and should be ashamed of myself. I remember I cried myself to sleep that night. Couldn't I ever do anything right? It seemed I couldn't.
A week or so later the youth leader called again. She spoke with my stepmother and then asked to speak with me. I realize that her explanation was meant as an apology but it was, really, a cementing of an idea that had been growing in me for years. You see, she told me she was very sorry but she had forgotten about me.
Forgotten about me.
I was forgettable.
My response? Oh no, that's okay. Don't you worry about it! My feelings don't matter, let me make you feel better. And she did. And that was when I knew: I didn't matter. Not to my family, not to strangers. Not at all.
Over the years I have searched for people that will love me, for whom I would matter. You ever see two people, friends, family, spouses, and when one walks into the room the other lights up? I want that. Who doesn't? Just one person to think of me each day. To notice if I'm not around. To love me enough to push and prod until all my neurosis lay in a broken heap at our feet. For a while, I thought I'd found that.
So fast forward to about eight months ago or so. Myself and six other women had this group. We met on a private fb chat and watched a movie together and talked once a month, sometimes twice. We had a private group page and shared our lives, we'd known each other for about 13 years but lived too far away from each other to get together in "real life". One of our group often isolated herself and had been gone for a while. I called, I messaged, I sent cards. She avoided. One day I finally got her and she cried, saying she was afraid to come back to the group, that we would be angry with her for having been gone so long. I promised we weren't and she said she would come back. I thought it would be nice if she could see how much she meant to everyone, but in order to not single her out, I created posts with each of our names on them. The idea was that each person should write something they really loved about that person. Everyone participated and wrote wonderful things about each other. The other ladies told each other how they felt they were like daughters, sisters, mothers, how special, how talented, how loved they were. Under my name? They all wrote in varying ways that I was a good mother.
Oh, I know. It's silly to be hurt by such a thing. But you see, I was ten again and felt like an afterthought, someone that didn't matter so much, but you included because you were being nice. I didn't share how hurt I was, I knew I was being childish. But the truth is, I have always been that little ten year old girl with so much hope only to be told I'm forgettable. Of course, I didn't realize at the time, but I was well on my way to this little island of crazy I'm currently inhabiting. The price is high but as they say in real estate: location, location, location. And the location of this little island is right in the center of all my broken dreams, lost hopes, blackest moods, biggest fears, neediest impulses, deepest pains. So I think I reacted to the exercise more emotionally than I would have had I not already been developing all those little tiny cracks.
Who doesn't have baggage? Who doesn't carry a lot of hurt and pain around with them? I know a woman that was sure that every time she walked in a room and someone laughed that they were laughing at her. Didn't matter that they hadn't even seen her, all those little snubs and hurts and insecurities started poking at her until she felt like she was wrong somehow, less than. Most people have them, learn to heal them or live with them or let them ruin their lives. Usually one of the three. I'm somewhere smack in the middle of that triangle.
In the end, I think our lives all come down to perspective. We cannot see anything through eyes other than our own and our experiences color everything. But there is someone that sees all things, clearly.

Hebrews 4:13 Nothing in all creation is hidden from God's sight. Everything is uncovered and laid bare before the eyes of him to whom we much give account.

Matthew 6:3-4 But when you give to the needy, do not let your left hand know what your right hand is doing, so that your giving may be in secret. Then your Father, who sees what is done in secret, will reward you.

Matthew 6:6 But when you pray, go into your room, close the door and pray to your Father, who is unseen. Then your Father, who sees what is done in secret, will reward you.

See a theme there? God sees everything, even into our hearts. God can see what is really happening, and He can see how WE see what is happening. And guess what? God loves us, insecurities, neurosis, breakdowns, breakups, crackups and all. Because, in the end, our perspective is flawed. God's however, never is.

Zephaniah 3:17 The Lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with his love, He will rejoice over you with singing.

Now go find yourself the soundtrack to The Prince of Egypt and listen to the song "Through Heaven's Eyes" sung by the extraordinarily talented Brian Stokes Mitchell or go to this link and remember, God sees everything and He still loves you. 


Monday, October 12, 2015

Let's Visit Loneliness Again

     I have - or had, not sure any more - a wonderful group of friends. We were a group of seven women and we've known each other for about thirteen years. The last couple of years have been very hard financially for my kids and I and my friends have been so wonderfully supportive. When they found out that the last week of the month is so lean I don't eat, and that Noah doesn't eat that much, they sent groceries, grocery money. When they discovered we couldn't afford the groceries for a Thanksgiving or Christmas feast, they ordered them delivered straight to our door two years in a row. They sent Christmas presents to my children. Lovely women. Truly a blessing from God. They didn't care about our financial situation, understood that I could never repay them, and reached out to help us anyway. We would not have made it through the last two years without their kindness and generosity.
     It seemed that these wonderful women would always be in my life, they were my family. But then, depression hit. I can deal with depression. It made things a little harder, moving through life was a little more difficult but I was still moving forward. Then the anxiety hit. Terrible panic attacks, paralyzing fear. I tried to talk to these wonderful friends of mine but they didn't seem to listen. I was told to look on the bright side, to stop feeling sorry for myself, to make the choice to be happy, to be stronger. I could feel their impatience with me growing. They messaged less and less. No more phone calls. I tried not to talk about how I was feeling, I understood that there were some things people didn't want to deal with, even the most wonderful, giving, loving people. After a while there was silence. No phone calls, no messages. I would check my mail every day hoping for a card, a little note that said "Hey, I love you and you are not alone. I'm thinking about you." It took a few weeks to realize the mailbox would be empty but for the bills and junk mail, that the phone was not going to ring.
     I have never felt more alone in my life, and that is saying something. There has been one woman, a newer friend that I am still getting to know, that has been here for me as she can. I say as she can because she deals with many of the same issues I do: financial struggles, physical pain due to a disease or disorder (though she hasn't received a diagnosis yet but we are praying for one), depression, anxiety. She knows my darkness and sits with me in it when she can. I try to do the same for her. When my family of girlfriends abandoned me, God had someone else ready. He had laid the foundation for this two years previously when her daughter met my son at school. Eventually her character convinced my son - who had been an atheist up to that point - to come to her church. He would walk every Sunday to mass. Four miles round trip in the hot Florida sun, wearing his dress shirt and tie and not made for long walks dress shoes. One day her father found out and the rest is history. He started taking Noah to mass, became his sponsor in his RCIA class. Her mother and I started talking and we really clicked. Then things started to fall apart in my life. But God had already known what was going to happen, He had already been at work preparing.
     How much time do you think God spends working in the background of our lives, building bridges over troubled waters, spreading safety nets for those times we try to fly without Him, preparing a shoulder when we need a friend? I think He spends a lot more time than we realize. I think God is always working on something, forever at His loom weaving the tapestry of our lives. We may lose sight of God but neither God nor Jesus has ever lost sight of us. The bible abounds with proof of this but I think I was most moved to believe it when I read John 17:20-26:

My prayer is not for them alone. I pray also for those who will believe in me through their message, that all of them may be one, Father, just as you are in me and I am in you. May they also be in us so that the world may believe that you have sent me. I have given them the glory that you gave me, that they may be one as we are one: I in them and you in me. May they be brought to complete unity to let the world know that you sent me and have loved them even as you have loved me. Father, I want those you have given me to be with me where I am, and to see my glory, the glory you have given me because you loved me before the creation of the world. Righteous Father, though the world does not know you, I know you, and they know that you have sent me. I have made you known to them, and will continue to make you known in order that the love you have for me may be in them and that I myself may be in them.

     That was about me. That was about you. Even before we were born Jesus was praying for us. Even in this moment Jesus is praying for us. We don't deserve it. I am often ashamed to address Jesus in prayer, I know that some of the pain, the horror that He endured was caused by me. By my selfishness, my sins, and I have a hard time coming to Him in prayer. But Jesus will wait for me, as will God. And in the meantime, Jesus will continue to pray and God will continue to weave a foundation for me that no amount of anxiety or depression can obscure. Lupus pain and illness cannot change. Loss of family and friends cannot break it. If I have no other family, if there is not a human on this Earth that thinks of me on any day, I still have a Father and I still have a Brother and they are weaving and praying and loving me and when I am so alone on this Earth I weep, I am not alone in Creation.

Monday, September 28, 2015

A Little Side Trip on the Crazy Train

At the last stop I got off and boarded the crazy train. Not by choice. I think I was just going to the gift shop at the train station to restock on chocolate and got on the wrong train. This one is terrible and the sound of the wheels against the track is like a voice that tells me this fight is pointless. I've tried everything I can to combat this anxiety and depression. Eating healthy within my limited food budget, exercise daily, drink lots of green tea, none of these things seem to be helping. I've lost all but one of my friends, this is the one tough time they couldn't seem to stick through. I've been told to stop feeling sorry for myself, to make the choice to feel better and that has only left me more alone. This is not a choice. Trust me, who would choose to feel like this?! Two years ago on the 23rd of this month a dear friend of ours committed suicide. At the time I could not imagine why he would do such a thing. His business was successful, he was surrounded by loving family. I understand so much better now. Sometimes when I'm not in crazy mode and I feel almost close to normal I can still feel it, like an itch, in the back of my mind. A watchfulness, wondering what is the next thing to set me off, when am I going to feel that awful anxiety again? Anxiety is such a tame word for it. It is a terror, a horror, and because it is inside of your mind you can't escape it no matter what you do. I've been reading two books during this time: the bible and Thornyhold by Mary Stewart. I've read that book about two dozen times in the last few months. While reading either one I achieve a quasi-calm. I read a daily devotion from In Touch Ministries (www.intouch.org) and follow up with Psalm 118 and Matthew 11:28-30 then I just flip through until something catches my eye. I have a lot of passages highlighted and tons of bookmarks in my bible so I often turn to something that has brought me peace before.
Recently I was allowed to go through some of the old family photos. I found a few pictures of myself as a little girl. I was not a happy child. Solitary and lonely, always daydreaming, so different from my family. Most of the pictures show me with a small, forced smile. I felt unloved and knew that it was true. One of the biggest revelations in my life has been that I have spent my life looking for love and approval, never to find it. I didn't remember my mother, my father was too busy with my brothers and my stepmother was every kind of evil stepmom cliche' rolled into one. Do you know what it does to a person when the people that are supposed to love them do not? You look for love, everywhere.
I grew up in a fire and brimstone church and heard the phrase "God'll get you for that" often. I developed a fearful relationship with God, with which I still struggle. Over time though I have come to realize that all the love, all the parental guidance and approval I have longed for is available to me through God, my father. Because He is, indeed, my father. And yours. He isn't sitting up on some cloud looking down and saying "Okay, if she messes up one more time I'm really going to give it to her!" It took me a long time to figure that out - though I still have those irrational fears in the back of my mind.
One day, though, while looking through the bible I found a passage that gave me such a wonderful look at God as a father that I not only underlined the passage but I got out my yellow highlighter and then added a bookmark to the page. I turn to it often:

Hosea 11:1-4
When Israel was a child, I loved him
and out of Egypt I called my son.
But the more I called Israel
the further they went from me.
They sacrificed to the Baals
and they burned incense to images.
It was I who taught Ephraim to walk,
taking them by the arms;
but they did not realize
it was I who healed them.
I led them with cords of human kindness,
with ties of love;
I lifted the yoke from their neck
and bent down to feed them.

Such a wonderful image of a dedicated, loving father desperately trying to help His children. Even if you didn't grow up with parents that loved you, you still did, because God has always been your father. And mine. I think about that a lot lately, and I turn to my father in these dark times. I know He is there, I know. But so often I still feel alone in the dark. But I read those words in Hosea and I think that maybe as much as I am struggling, He is trying to help me. I hope so, I really need the help right now. 

Thursday, September 24, 2015

Third Stop: The Neighbor's House. Population: Everyone

     Before we lost our house it was the place to be during the summer - at least for all the neighborhood kids. We had a three lane slip-n-slide as well as a Banzai skimboard surfer slip-n-slide that you took a run up and jumped on this little board and tried (though rarely successfully) to stay on your feet down the length of the slide. I cooked out every afternoon. During sudden rain showers we would all gather on the porch and I'd pass out little cups of ice cream, the kind with the wooden spoons. Evenings were filled with flashlight hide and seek and sparklers. We had some epic Nerf battles and plenty of grade school drama. It was a nice neighborhood and everyone got on well together, for the most part. Here in the complex we don't really know most of our neighbors. There was a murder soon after we moved in, and then another, so we keep to ourselves. Who are your neighbors? Do you host dinner parties for them? Have backyard barbecues, feel comfortable running over for a cup of sugar? Maybe you don't know them very well, maybe you just wave when you see each other but couldn't place them if you met up at the grocery store.
     Jesus instructed us in Mark 12:31 to love our neighbors as ourselves. And He didn't just mean the guy across the street that doesn't close his robe when he goes out for his morning paper. Or the sweet old lady down the block that always has a wave and a smile. He meant everyone. Everyone is our neighbor. Every. Single. Person. And we are supposed to love them. And yet, the world is full of hate. We hate each other over something as ridiculous as skin color, we fight each other over cultural choices, we despise each other over financial status, we fling hate at each other over sexual orientation. And everyone has a reason, some foundation for their hate that they feel is absolutely justifiable. But hate is wrong, always.Sometimes, as we are not perfect, we can't always help it. I'll freely admit that I hate my ex-husband. It is something I'm working on, but I'm so very much not there yet. People hurt us, or they hurt someone we love, they do something truly evil and we hate them for it. It's something to work on. But when you pick and choose bits of the bible to support your hate and attempt to make it acceptable, I have to draw the line. I have absolutely no idea how many times Jesus admonished us to love each other, but He said it a lot. In fact, love was kind of his theme: 'Love me, love God, love your enemies, love everyone'. And He didn't just say it, He showed it. Time and again Jesus taught by example. In Luke 14:13-14 Jesus tells us to invite the poor, the crippled, the lame, the blind, to our banquet. Well, you can just substitute any word for banquet because He means to include them, to treat them equally. And then in Luke 15: 1-2, He does just that. Jesus is hanging out with tax collectors and other "sinners". Jesus is teaching them, speaking with them, treating them as equals, as He instructed us to do ourselves. Jesus never saw poor people dressed in dirty rags, He saw brothers and sisters, children of God. Think about that. Whenever I get really negative about my ex-husband, I remind myself of that - he is a child of God. We all are. God made each of us, God LOVES EACH OF US. So when we exclude others, when we look down at others, we are doing that to someone God loves. Imagine someone treating a child of yours that way! And I don't care what "sin" YOU feel they committed. That isn't up to you to decide or judge. Jesus was very clear: love one another. In Matthew 5: 43-47 Jesus tells us to love our enemies. Be kind to them. Don't just love the people that love you, don't just be kind to those that are kind to you. Love everyone, be kind to everyone. Seriously, I've got to go through the New Testament and count how many times He tells us this.
     Lately the news has been filled with hate for the poor and homeless and most of that hate is coming from "Christians". That absolutely baffles me! With so many clear admonishes to love everyone, how exactly are we justifying so much hate? I am continually shocked at the vitriol directed toward the homeless. Why? When my children and I were homeless we met a lot of lovely people in the same situation. They weren't on drugs, they weren't sitting around being lazy while trying to take your hard earned money. They were regular people, hard workers, most of them homeless because they had been hit with a medical condition that drained their finances, left them struggling. What is their sin, exactly? I am reminded of a news article about a wealthy community that called the police because they thought a homeless person was sleeping on a bench in front of their church. Turns out it was a statue of Jesus that had been donated. But those church goers were horrified at the thought that some "street person" might be hanging out by their church. They weren't moved with compassion to help this person, they wanted to banish him. I have a feeling Jesus was not in attendance at their service, He was clearly not invited.
     I get it, I really do. That whole "love everyone" thing is a lot harder than Jesus made it seem. I mean, He's the son of God. He's love and light. He looked at the people around Him with only hope and compassion. We struggle with loving ourselves, even with loving the people that love us, so of course we struggle with loving people that are different than us. But make no mistake, that is our assignment. That is the whole meaning of life, in case you've been wondering about that: Love God and love each other. And when you give it a little thought, it really is that simple. The next time you feel like being unkind, losing your patience, making a snarky comment, remember that the object of your hate is a child of God, wholly and completely loved by our Creator, and your brother or sister in this family of God's. And then. . . choose love.

Friday, September 18, 2015

Second Stop: Loneliness. Population: Me . . . and Jesus

     Growing up in a houseful of brothers all several years older than myself, I spent a lot of time alone at home. Picked on at school, I spent most of my time alone there as well. Lonely became comfortable, safe. Each time I tried to reach out I would end up with another broken piece of my heart in my outstretched hands. I was always hopeful though. I dreamed of a warm, loving family. Close girlfriends and sleepovers. We had several board games at home and I usually played them by myself, hoping someone in my family would come along and take pity on me. I was desperate enough to be willing to accept a pity game but they never joined so I played alone. I grew up and married a man much older than myself who traveled for work. He'd fly all over the country, was gone for months at a time. Our daughter was born with severe disabilities and the few friends I had at the time were so uncomfortable they stopped coming over. Once again, I was alone most of the time. I actually looked forward to the many hospital stays. There was a sense of community within the pediatric ward at the hospital. Eventually my son was born and I wasn't so alone anymore. As he grew we spent a lot of time reading together, playing board games. I cannot tell you how much I enjoyed buying his first board game! Within a few years we had a walk-in closet dedicated to board games. Now that he is a teenager though, he spends most of his time in his room with the door closed. Board games, crafts and reading with Mom are just not as appealing as they once were. Home bound in a town where we know very few people, I am alone again. Over time, though, lonely stopped being a comfortable place. Lonely stopped being quiet and safe. It roars in my ears, pulling the walls in until I am suffocating. My anxiety has grown until it is a monster that shadows me, giving me no peace. I tried to talk to a few of my friends about this growing anxiety and depression. I got a lot of suggestions like "Start your day with positive thoughts" and "Happiness is a choice". I know they didn't mean to do so but their advice only made me feel more alone. In fact, I have never felt more alone in my life and I think that is saying something.
     I turned to my bible but it didn't really help. Not until I ran across a daily devotion that detailed some of the emotions that Jesus experienced in the last weeks of his life. One of those emotions was loneliness. I was shocked. It had never occurred to me that Jesus would have been lonely. He was always surrounded by people that loved him! How on Earth could he have been lonely? I read the bible passages that accompanied the devotion and realized that if this was true then Jesus understood what I was going through - because He, too, had experienced loneliness! And not just loneliness, sadly, but fear and loss as well. I began to look at passages in the bible differently. Suddenly I could see a pattern that had escaped me all of my life. I grabbed a blank index card and wrote in bold letters: Jesus Understands. On the back I listed several stories in the bible that illustrated this fact. And as I read my bible each day, I am on the lookout for more. You see, I had always had this vague idea that Jesus had a pretty simple life. He knew who He was, He completely understood and embraced His purpose. Things like fear, loneliness, grief, anger . . . they didn't mesh with the experience I imagined Jesus had as a man. I thought the knowledge that he was the son of God was somehow  . . . insulation against the deeper, negative emotions. But the truth is He came to Earth as a man to fully and completely experience life as a human. Love, anger, loneliness, grief, need, hunger, fear - all part of the human experience. The next day the devotion was about the names of Jesus and how they described the different aspects of his life: Prince of Peace, Almighty, Bread of Life, Great Shepherd, Counselor, Deliverer . . . the list was extensive and each one added another piece to the puzzle of Jesus that I was slowly putting together. Then I saw the name Man of Sorrows:

He was despised and rejected by men; a man of sorrows and acquainted with grief; and as one from whom men hide their faces he was despised, and we esteemed him not. Isaiah 53:3

     I cried when I read that. I hated the idea that Jesus suffered that much. On the heels of that terrible realization I finally understood that He is called Counselor because He has lived through the same pain, He understands, and can counsel us accordingly. There is comfort in that, as God intended, I'm sure. When the anxiety takes over, I try to hang on to that one truth. When the loneliness threatens to consume me, I cling to that one, comforting truth:

Jesus Understands

     Perhaps you will find comfort in that truth as well. When you are overwhelmed by loneliness, when you are stumbling around in your own personal darkness and feel like even your friends have abandoned you, remember that Jesus felt the same way in the Garden of Gethsemane (Matthew  26:36-46). If you are drowning in grief consider that Jesus wept over the death of His friend Lazarus (John 11: 33-36) and showed His understanding of the grief of others when He raised the widows son from the dead, so moved was He by her tears (Luke 7: 11-17).  Jesus understood fear as well. How else can you explain His reaction when the people came to Jairus, with whom He was walking, and told him that his daughter was dead. Jesus immediately told Jairus "Don't be afraid; just believe." (Mark 5:36) Jesus knew the news created an instant reaction of fear and dread within Jairus. I imagine He took him by the shoulders and looked deeply into his eyes as He told him those beautiful words, words I often repeat to myself: Don't be afraid, just believe. 
     Life is a journey over rough terrain. The twists and turns and bumps can leave us bruised and broken. Thank God (literally) that there is a Counselor we can turn to who knows exactly what we are feeling because He was bruised and broken, too. 


Tuesday, September 15, 2015

First stop: Doubt. Population: Millions.

     When God delivered the Israelites from Egypt, He did so with what could be considered much pomp and circumstance. While it is hard to think of the word "miracle" when one considers the plagues that befell Egypt, they were just that - miracles. Signs and wonders. From the burning bush to the manna in the desert. God was performing incredible miracles for all to see. And yet, how did the Israelites respond? Each time circumstances turned difficult, they doubted. They railed against Moses. They wailed and cried and often wished to be back in Egypt, once again enslaved but comforted by the familiar. I can certainly sympathize, I'm not an adventurous person myself and the familiar is, indeed, safer than the unknown. But I have always puzzled over their doubt. How could they doubt? God brought plagues, parted a sea and allowed them to walk across the seafloor to safety, He provided a guiding pillar of smoke and another of fire, poured down food from heaven. . . ! I am certain I would never doubt God if He manifested such extraordinary miracles in my presence.
     Or would I? What is the nature of a miracle? Is the word "miracle" not defined as an extraordinary act of divine intervention?

An extraordinary act of divine intervention.

     Does a miracle have to be as awesome as the parting of a sea for us to count it as such? Or can a miracle be . . . quieter? Certainly just as awe inspiring but on a smaller scale. A kind stranger when you were at the end of your rope. Twenty dollars pressed into your palm by someone that whispered "God wanted me to share this with you" without realizing you couldn't feed your children that day. A call, out of the blue, from a friend when you need someone the most. We tend not to think of such things as miracles. Some even might call them coincidences. But make no mistake - they are, indeed, extraordinary acts of divine intervention - and at the time we usually recognize them as such. But, like the Israelites, we often forget those gloriously intimate moments with God and allow doubt to take root again.
     While reading Exodus recently, I realized that I, too, doubt God even in the face of wondrous miracles. Divorced, caring for two children alone, struggling with Lupus, my daughter's severe disabilities, and financial difficulties, I have met God many times in both friends and strangers alike. And yet, when the next crisis occurs, I doubt. How can I possibly look at the Israelites with incredulity when I am no different? Does it matter that paying the rent isn't as "showy" a miracle as parting a sea? Because despite the fact that it was not a miracle to garner worldwide attention, being gifted with the money to pay my rent was still an extraordinary act of divine intervention. A miracle I prayed for most fervently and a miracle that God delivered, among many others. Some of those miracles I have forgotten. Isn't that terrible? Moments that God made it clear that He was right there, by my side, actively working in my life, and I've forgotten many of them. Life moved on and those "ordinary" miracles were forgotten in the overwhelming worry of the next difficulty.
     Aren't we lucky Moses took the time to commit to paper the many miracles God performed for the Israelites? Imagine those events occurring now and Moses authoring a blog:

'Yesterday God parted the Red Sea so that we could walk to safety. It was an extraordinary feat, a glorious example of the power and majesty of our God. Today the people look out at the desert before us and think maybe they should have stayed in Egypt. God, give me patience!'

     Perhaps the Israelites would have been a little less doubtful if they had the chance to read daily summaries of their activities, realizing that God always saved them. But, somehow, I doubt it. After all, I have the entire Bible of miracles as well as the experience of miracles in my own life and still I doubt. I worry. I become consumed with anxiety and fear. I forget miracles.
     Luckily, God does not. He does not forget that we are human and fallible. He does not forget that He loves us and has gone to great lengths to save us - usually from ourselves - time and again. Rather, He walks patiently with us, working miracles and weaving them into the tapestry of our lives so effortlessly that they appear as common occurrences to us, appreciated in the moment but quickly forgotten. It would seem that little has changed since the time of Moses.
     I'd like to conclude with some suggestion, some divinely inspired gem of wisdom that will take away all of your doubts, fears, and mine, but I have none. I am not, after all, Solomon. I probably would have asked for wealth, or beauty, or the love of a particular someone. If I'd had a little time to ponder maybe even calorie free chocolate. But not wisdom. And so I will leave you with this: GOD HAS YOUR BACK. Write that down somewhere because you are going to forget it soon. And you know what? God will have your back anyway. And that, dear reader, is the most extraordinary act of divine intervention of all.